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A common but poorly understood disorder stigmatizes and isolates patients

Neurofibromatosis (NF) causes tumours to grow anywhere on or in the body. Despite the fact that this genetic disorder is as common as cystic fibrosis and more common than muscular dystrophy, Huntington's Disease and Tay-Sachs disease combined, the general public knows little about NF. It is estimated that NF1 occurs in one in every 3,000 births and NF2 occurs in one in every 40,000 births.

The Association de la Neurofibromatose du Qu茅bec and the Montreal Children鈥檚 Hospital want to shed some light on neurofibromatosis. Children and adults with NF, as well as parents and physicians, will be on hand during a press conference to unveil a new bilingual educational video entitled 鈥淓merging from the Shadows.鈥� In addition, Dr. Bruce Korf, a nationally recognized leader in human genetics and internationally regarded as a leading authority on neurofibromatosis, will discuss the disease.

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